The feeling when it goes in,
Look away, look away,
Pinch,
Breathe,
Stab,
Breathe,
Ache,
DEEP BREATH...
And out,
And out comes the needle
Like a cramp searing my vein,
And the IV is in again.
Friday, August 19, 2011
Wednesday, March 30, 2011
Aftermath
The aftermath of cancer and the realization of surviving something so enormous is often overwhelming. I find myself spending days battling with each part of myself. One side is this wounded child who needs constant comfort and attention, the other side is this strong adult who wants to defend against injustice. Lately they have become rather extreme, often feeding each other. The adult protects the child in a way I never got as a child. But who is caring for the adult? And where is the balance? This is a fear that goes beyond just average fear; that I may never find that balance or anything resembling a comfortable life. As much as I despise complacency I sometimes want to embrace it if for no other reason than to feel less alone and less isolated and less judged by others. There is no one I fully trust in this world. All I want to do right now is scream and kick, but the adult keeps telling me to settle down. I want a mom to cuddle me and read me a story, but I am 35 years old. It's like age (and societal norms) robs us of our natural animal tendencies. It's not easy to deal with life when you spend each day thinking about death. I feel trapped. Every day I keep hoping to escape but to be honest, it is me that is my own captor and it is me that is my own cell. How do I let go of 35 years of me? And what happens when I do?
Tuesday, March 8, 2011
Dream About Eggs
I dreamed last night that all the girls in my class were sitting in the student lounge peeling hard boiled eggs. Natasha was doing it really carefully; dainty, and I think she had a tea coaster underneath, as if the egg were a little tea cup. Miriam was doing it very German (I'm not sure what that means but she was talking in German); I think she was singing in German at some point. Julia was picking pieces off bit by bit with her fingers and when no one looked she'd use her teeth and spit the shell on the floor. Vanessa was whispering sexy things (or sweet nothings) to it and ripping off each piece like you would pull a feather off a chicken or a petal off a flower you were mad at (“He loves me, he loves me not). I believe Lize was praying on or to hers and possibly dressing it up in little clothes. Jeremy (the only guy there) was holding Jasmins’—there were two. Lara was sitting on one egg and had a basket of several others (that seemed to be coloured in pastels, like Easter eggs) on her lap and she was trying to balance them all, and I think Shanty had hers balanced—one on her head another on her foot, and one between her boobies, maybe even one on her back but that might have been Zeb. Aya was smashing eggs somewhere in the back & stomping on them or throwing them against the wall, and I think Ally was watching her. Schuyler was sort of an egg herself and was uninterested in the egg peeling so she just sort of watched while standing on her skateboard. Emma was just peeling at random, and then said “I used to reach in and peel my own eggs.” And no one was surprised. I was walking around watching the peeling saying “I don’t eat eggs.”
Wolf Dream
(from a few weeks ago)
I had a dream last night that a wolf burst through my door and chased me down a hall & I closed the door just in time for him not to get in, but I knew my mom had been out there before & a wolf had "got" her. Then I noticed the other door was unlocked & there was no lock on it & the wolf was right outside. I just kept hoping that he wouldn't realize that the door had no lock.
I had a dream last night that a wolf burst through my door and chased me down a hall & I closed the door just in time for him not to get in, but I knew my mom had been out there before & a wolf had "got" her. Then I noticed the other door was unlocked & there was no lock on it & the wolf was right outside. I just kept hoping that he wouldn't realize that the door had no lock.
Sorry I haven't been posting much lately. I just realized I've skipped over the first two months of 2011 without a single post. I think part was that I was away in CA for a month and got busy, and part is that I've been using my writing time to work on my play. Right now it is two plays that may or may not mush together. I'm also thinking about turning more of my dreams in plays, like I did with An Exercise in Futility in 2006. I have a few dreams I will post here as well that will become part of the play/s I am currently writing and maybe short plays of their own. Maybe I'll add more dance portions to the mix! ;)
M
M
Drugs
March 8th, 2011
In this weeks research (and no, I'm not over doing my research. I do some then I move on to watching mindless TV after hitting my head against a wall a few times--- just kidding!). This week I discovered that there is a conection to Tamoxifen reducing and/or eliminating the manic side of manic depression, aka bipolar disorder. I was diagnosed with this a million years ago as a kid & again as an adult. My symptoms subsided after my mom died.
Since getting cancer I've been on the roller coaster, or "cancer-coaster," and it's difficult to tell what causes what at this point. But I am more down than up. I keep telling my friends at school that I am really tired or depressed & they all respond by saying "Yeah, me too. All I want to do is watch a movie and sleep in." It doesn't help anymore mentioning it because 22 year old pot head students are all going to say they are tired, but they don't fully get what tired really means to a bc survivor (I do cringe when I use the word, but I'm at a loss here for alternatives).
Anyways, I searched a lot online & discovered of course that there are extremely limited options for anti-depressants while on Tamoxifen, and somewhere in my research I came across a drug called Modafinil that is used to treat people with sleeping disorders so they can get more energy & be awake. It stands to reason that if Tamoxifen is reducing and manic symptoms in the bi-polar patients that this Modafinil might reduce my depression symptoms and possibly increase my energy. So I Googled the two together to see if there are any connections or interactions and I found this article. It sounds like, not only will it increase energy (which in turn MIGHT help us sleep), but it also improves memory and brain function. For those of you with chemobrain you might want to ask your doctor about this one!
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2796482/
In this weeks research (and no, I'm not over doing my research. I do some then I move on to watching mindless TV after hitting my head against a wall a few times--- just kidding!). This week I discovered that there is a conection to Tamoxifen reducing and/or eliminating the manic side of manic depression, aka bipolar disorder. I was diagnosed with this a million years ago as a kid & again as an adult. My symptoms subsided after my mom died.
Since getting cancer I've been on the roller coaster, or "cancer-coaster," and it's difficult to tell what causes what at this point. But I am more down than up. I keep telling my friends at school that I am really tired or depressed & they all respond by saying "Yeah, me too. All I want to do is watch a movie and sleep in." It doesn't help anymore mentioning it because 22 year old pot head students are all going to say they are tired, but they don't fully get what tired really means to a bc survivor (I do cringe when I use the word, but I'm at a loss here for alternatives).
Anyways, I searched a lot online & discovered of course that there are extremely limited options for anti-depressants while on Tamoxifen, and somewhere in my research I came across a drug called Modafinil that is used to treat people with sleeping disorders so they can get more energy & be awake. It stands to reason that if Tamoxifen is reducing and manic symptoms in the bi-polar patients that this Modafinil might reduce my depression symptoms and possibly increase my energy. So I Googled the two together to see if there are any connections or interactions and I found this article. It sounds like, not only will it increase energy (which in turn MIGHT help us sleep), but it also improves memory and brain function. For those of you with chemobrain you might want to ask your doctor about this one!
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2796482/
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